Monday, June 29, 2026

Institutionalizing Disability

I was watching this video this morning.  I am sharing the link  below.  I am really struggling with actually protecting my son.  There is nothing out there for him.  I know what to  do but with no funding or donations how do I put us out there so that this can be a real thing.  It is almost like I am going to have to really sit don't and really fight for these battles.  It is just so many of them.  I find that I keep stressing that I am tired.  There is no money.  How do we go about this.  

 https://www.facebook.com/reel/1277527551127811 


This was comment:

Crazy! I hear you. I am a mom of a 19-year-old level, one autistic man. I was told that he didn't qualify for anything. Once he turned 18, there's no services for him. He can't hold down a child. There's no money, I am. The only paycheck in the house. My son is in college to be an artist, but he has to take prereq classes that he don't understand there's no 1 on 1's. I am the 1 on1 I can't go back to school to finish my nursing because I'm in school with my son to be an artist. I bought a house so that he can have his own room and my one paycheck only pays for this house struggling to feed both of us. The advocates are not teaching the new ones. They're gatekeeping.

And they're giving up, I don't want to say, it's a racist thing. But if white people subtle, it makes it harder for the minorities. I can have a conversation with you about all the things that's wrong. And how many ways it can be fixed? But the biggest concern is always going to be funding. There's no money anywhere people don't want to donate. There's there's no grants, and if they are, they're holding tight to the grants.


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