Goodbye June

Institutionalizing Disability

I was watching this video this morning.  I am sharing the link  below.  I am really struggling with actually protecting my son.  There is nothing out there for him.  I know what to  do but with no funding or donations how do I put us out there so that this can be a real thing.  It is almost like I am going to have to really sit don't and really fight for these battles.  It is just so many of them.  I find that I keep stressing that I am tired.  There is no money.  How do we go about this.  

 https://www.facebook.com/reel/1277527551127811 

This was comment:

Crazy! I hear you. I am a mom of a 19-year-old level, one autistic man. I was told that he didn't qualify for anything. Once he turned 18, there's no services for him. He can't hold down a child. There's no money, I am. The only paycheck in the house. My son is in college to be an artist, but he has to take prereq classes that he don't understand there's no 1 on 1's. I am the 1 on1 I can't go back to school to finish my nursing because I'm in school with my son to be an artist. I bought a house so that he can have his own room and my one paycheck only pays for this house struggling to feed both of us. The advocates are not teaching the new ones. They're gatekeeping.

And they're giving up, I don't want to say, it's a racist thing. But if white people subtle, it makes it harder for the minorities. I can have a conversation with you about all the things that's wrong. And how many ways it can be fixed? But the biggest concern is always going to be funding. There's no money anywhere people don't want to donate. There's there's no grants, and if they are, they're holding tight to the grants.

AI Makes Sense

There have been talks about AI taking over.  I haven't actually let it do that yet.  I have tried both Gemini and ChatGPT.  Let me be honest.  They have been guiding me  on 1 big mission.  I have been struggle with being in survival mode.  I haven't quite come out of it yet.  It is  crazy how between AI and my son who is highly functioning autistic, has been trying to change my mind set.  My son has reminded me how amazing, I really am.  Chat GPT and Gemini reminds me that while I am amazing, I have to remember that I am not superwoman.  Crazy thing is this survival mode thing must be new because I always have had too much on my plates.  I don't understand why it looks like I am the crazy one when everyone has put their own shit on me!!!  Not enough that I am not sure what is considered my own shit.  I have since learned and decided that the survival mode shit isn't for me.  I don't understand why the bull shit is put against me.  I am being told to put this in God's hands and yet I am fighting way to many battles and now I am just want to fight my own battles.  No one is coming for me.  I am all by myself and I am the only one who seems to be coming to the rescue.  I am now going to fight my own battles.  

 

Failed My Son

 

Feeling like I failed my son.  Nothing comes easy to us.  Even college isn’t kind to our children/adults with special needs.  My son is invisible.  He can function with his peers and he has struggles sometimes worse than others.  To hear my son ask me if he is a burden.  How do I not allow him to feel like he is a burden.  I have dreams and goals that need plans to make happen.  I feel like I need to focus on him in order to make those things happen with him.  I feel like I should give up on me, so that he can survive.  I am his mother.  I need to build for him.  Hustling doesn't look the same way it did when he was little.  It almost feels like I am going to need to work just to get him to his next steps.  This is almost crazy.  I don’t understand why everything is hard.  Why is my next chapter so hard?  What are my next moves to protect my son?

Brought A House

 

So did I tell you we brought a house?!  I lost my damn mind.  It i s perfect!  It is my dream house.  It is everything I want but I don’t like being broke.  I only brought this house because my son was uncomfortable at my parents’ house.  We recently had a conversation.  He asked me if we rushed into this house.  We didn’t.  I just miss my lifestyle.  Now I need to rebuild and re-create a new lifestyle.  I do feel like we are in need.  I fear I can’t feed my son.  My main job will pay for the mortgage and the main bills.  My question isn’t how do I keep my house.  MMy question is how do I survive all that is in my head and survive in my house?  I really do like my house.  I am on my own trying to survive.

Year from Hell!!!

 

2025 -2026 year has been the year from hell.  I mean seriously!!! Now I have to learn how to rebuild my lifestyle.  I need money.  I need money to pay all of the debt and rebuild my house.  My son had a full time job.  Due to his disability, I have now realized where my son stands. I have so many regrets and concerns.  The School District is not ready for our special babies.  The real world  isn’t ready for our special babies.  He was trampled on and even missed treatment.  The climate manager started to work nice with him but he still would be a problem because he wasn't meant to be.  I am ok with knowing my son wasn’t at fault but now the question I have is what do we do next:  I  have so much work to do.  I need to do adult transition.  I need to do my side hustles because we need money.  I need so much, just to get $800 extra each month.  So much fun!!!

Wonder What's Next?

 

So I take pride in being the only one in my line having a college degree.  Recently mom told me that my grandmom has a college degree.  I am going to let that be.  I am not sure really what difference it would make for me.  I am struggling and very exhausted.  I have a son who has special needs.  He just graduated high school.  I am trying to get him through work and school.  He wants to be an artist.  Anyway, I will get back to that.  It took me 20 years to get my college degree.  I asked counselors and those who had the college degree, what can I do with an associate’s degree in healthcare studies?  I had 3 medical licenses and finally received a college degree.  Recently, I had to decide on looking for an at home evening 2nd job.  I thought I had a useless degree, when I really have a good degree.  With my medical assistant license, I am able to do medical assistant jobs at home.  I had recently applied to like 30 jobs.  I wonder what’s next for me?